Of Uno, Electrodes, and Precious Trial Moments

This is Connor, dear ones. 

A couple weeks ago, Connor, a family friend, found himself scary and sudden in the neuro world one morning. 

One moment, there was going to be cereal for breakfast, and the next, he was on the ground, his worried parents at his side. Then came an ambulance; hospital bound. And then came the deep challenge of working through what it meant to re-learn and remember after seizures knocked his body and short term memory sideways day after day. 

Connor ended up being transferred to Lurie and Chase and I were actually in the room at one point as Connor bravely fought through a seizure moment. Chase watched openly, and with his usual matter of fact voice, stated only: “If I can do it, Connor, so can you.” A rough and direct courage word, for sure, bless him. He would tell me later that he thought Connor was “very brave just like me”.

During Chase’s EEG monitoring, both boys needed to be in their respective beds, and so they started sending pictures and videos to each other via their moms phones: Chase beating me at Uno, Connor catching a nap, Chase with his head wrapped in electrodes, Connor eating a meal. 

And then Chase was discharged and it was pictures of Chase resting or throwing his javelin at home, and Connor getting to meet a therapy dog or being brave during treatments to help heal his body from the root cause of the frequent seizures. 

During that time, Chase dictated these words to Connor: 

“Dear Connor, I can’t believe it! I’m so excited for you! [that the treatment went well] Sometimes being stuck in the hospital – when I was stuck in the bed like you – is really hard, but you get good opportunities to meet people and be the hands and feet of Jesus. You know God is with you always and you can always think about home. And you have your family around you even if you can’t always see them.”

These words, as you know, are based on his long, often difficult experiences, and they ring true in many ways precisely because we know that he knows what he’s talking about, don’t we? 

Chase had his cardiac rehab assessment on Monday. This was hopefully going to be the moment when he would get to “re-graduate” and be done…and instead they said they’ll look at his numbers and get back to us. 

And then we went to see Connor again. 

Today, I  got the call that it’s not time to end cardiac rehab just yet. The official opinion is that Chase could benefit from another month at least. And I put the phone down and cried because I know it will help, but Chase is tired. We are all tired, really.

And then I thought about Chase and Connor and the gift of those connection moments. You see, the reason Chase was in the hospital last week in the first place was to try and get answers about his unresponsive episode in February. We spent two whole months on the test waiting list. Originally scheduled in mid May, every attempt to move the EEG forward fell through despite repeated efforts. And then there was a call out of the blue: “There’s an opening…can you make it?” 

Dear ones, Chase’s test time came at the exact moment Connor was in the hospital… and was only a few doors away on the same floor! There was such a precious bond of encouragement that was forged in their unique trials – simply because they got to be together in them. And even tonight, as I write these words and remember the moments together, I am reminded that trial moments are not wasted moments. Another month in cardiac rehab won’t be wasted… even if we have no idea what lies ahead.

In fact, nothing is wasted in the story our good God has for us.

“He is with us always…and we can always think about home.” – Chase to Connor

Moment by moment. 

“All praise to God, the Father of our Lord Jesus Christ. God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.” 2 Corinthians 1:3-4

**at the time of this post, dear, brave Connor has been seizure free for enough days that he was finally able to be discharged and come home. Today’s text thread included the comparison of who would get to take more naps today. 

Of Rough Seasons, Red Flags, and Defiant Thankfulness

It’s been twenty-four days since I got on the ambulance with Chase.

At the time Chase was first unresponsive and then tested in the ER, the radiology report indicated there might have been signs of micro-hemorrhage in one of the growths (cavernous malformations; cavernomas) in his brain. However, upon further review with all the teams downtown – who have access to almost fourteen years of scans and pictures – there is not enough of a change to positively declare a micro-hemorrhage. It turns out that the brain just looks a little rough around the edges when it’s been cut open and radiated and all sorts of life-saving measures in real time. 

And oh, in that moment when the calls came and the verdicts were handed down. I was so upset. I shocked myself, actually. And in the stillness and frustration, I had to confront the truth that I think I actually wanted it to be a micro-hemorrhage just because it was a crystal clear answer and those are horribly few and far between when it comes to Chase Ewoldt. 

Isn’t that crazy? Sometimes horrible things don’t feel so very horrible just because they come with some level of clarity. And conversely, a lack of clarity is it’s own fearful place, isn’t it? I’m so thankful God sits with us in those spaces, dear ones. 

What was far more worrisome to Chase’s regular teams was that Chase very clearly had a small season of confusion after he woke up. He was almost nonverbal, but he knew where he was and recognized who I was. However, that night, when Bob came to pick us up from the hospital, Chase was telling him how nice it was to see him finally on this long day… as if he had not seen Bob (talked to Bob, even) on his way into the ambulance within minutes of waking. 

This is something of a red flag to everyone as this tends to be a classic hallmark of what happens after a seizure. Only we didn’t see Chase have any seizure activity. In fact, the nurses pulled back his sleeping eye lids and his pupils responded normally to the light.

But there is another kind of seizure… one that is not really absent, present, or convulsive. In fact, from the little bit I understand, it happens in a napping moment and then the patient remains unconscious to the world while the brain recovers, looking for all the world like they are asleep. But they cannot be roused. Sounds heartbreakingly familiar, right? 

Perhaps at this point, you’re wondering why I am I sharing this with you while we still have no answers. Because this not knowing is Chase’s life, dear ones. And you’re always welcome on the journey…

Right now, we are staying in very close contact with his neurology team. And due to the high demand for pediatric care, we are on a waiting list to get a season of monitoring moved from May until now. During that time (whenever it comes), Chase will be admitted to the hospital and monitored for seizure activity for at least twenty-four hours with the hope (as always) for answers and clear next steps. 

So we are waiting. We are waiting for the neurology piece… and for several other pieces too because Chase has had a long and rough several weeks. What we do know right now is that there will be more things unfolding… most notably, following a long conversation on Friday afternoon, it was determined that Chase’s heart needs his body to be back in cardiac rehab. 

Over the last twenty-four days, the feelings of human brokenness and the fragility of Chase’s life have felt increasingly more overwhelming. So I’m sharing here some words that I wrote out for the women at the retreat last weekend. I’m holding them close…and maybe you need them too?

“I know, at least for my own part, that I most want to beg God during a season when I least feel like thanking him. But this particular practice of thanksgiving throws wide the doors on our stress and our sadness because even in our darkest moments, this verse [Philippians 4:6], this command is a reminder that we still have things for which to be thankful. 

This isn’t an arbitrary benchmark . It also isn’t God looking at us and saying, “I’ll give you this if you give me that” like some tit-for-tat argument. God isn’t a parent teaching an errant toddler to say please and thank you. 

Rather, I believe that this is a call to faithfully rehearse His goodness even as we fall apart in our present anxieties. This is us crying out: “God I can’t… please help… because I remember what you did before”. 

This isn’t a “Just say please!”, this is: “When you can’t see straight, don’t forget what I’ve done!” And when we speak our thanks, when we recall what God has done (even at times, out loud), we are essentially reminding  ourselves. …and we need this.”

This is where I sit right now: “God, I can’t, please help!” And even exhausted and with tears running down my face, I know there will be good – because He is good – even if I can’t see it all coming together right now. So by His grace, we will remain defiantly thankful even with no answers… 

Moment by moment. 

Chase in heart testing

Of Thursdays

“He came in complaining that he was tired and dizzy and he was asleep for a while, but now we’re having trouble waking him up. Do you have any tips or tricks? The sternum rub didn’t work…” 

A moment later, I hit the end button on my phone and I grab my bag and keys and head out the door for the high school. Am I wearing a bra? Do I have deodorant on? Maybe the sound of my voice will help… maybe the length of time will help…by the time I get there maybe he’ll be awake.

I pray as I drive and I take a deep breath. Don’t live on adrenaline like this, I chide myself. Maybe it’ll be okay and you’ll leave the school together in minute. 

I want to park in the school drive with my flashers on. I just want to get to him, but I take the extra moment to choose a parking space… just in case they need to get an ambulance into the drive, I think morbidly. Someone sees me park and says they might ticket my car since it’s staff parking and I reply that I’m heading to the nurses’ office for my son and I’ll take my chances. I make a mental note to tell someone where my car is so I don’t get ticketed.

The first thing to hit me in the nurses’ office is the impression of worried faces. “Come on through”, they motion. Chase is in the backroom on one of the beds. His face is so peaceful. There’s a monitor attached to his finger showing good numbers. His eyes move behind his eyelids like a restless sleeper and someone gently pulls back his eyelids to show how his pupils respond to the light. He’s not having a seizure. 

In fact, he looks so animated , so completely “normal”, that I find myself wanting to shake him and yell “Stop faking! Wake up now!” But I know… Chase’s loss of executive function makes him uniquely incapable of purporting a falsehood of any kind for more than a few seconds. He just doesn’t have it in him – the edges of him mouth starting to turn up if he even tries. 

The edges of his mouth don’t move, not even when he hears my voice. I take a deep breath and rub his chest where I know the rash from his heart monitor still sits on his skin. If he could respond, he would have bellowed and slapped at my hand for that. We – a nurse and I – sit him up, his head flopping almost precariously to one side… we lay him back gently and then shake and chafe at arms, legs, fingers… calling… pleading…commanding. Redoing all the things they’d been doing before I showed up, this time with my voice added. “Chase, you need to wake up now, buddy. If you can hear me, wake up.”

I hear myself babbling to the nurses about the difficulty of knowing what to do…how long to wait before calling. I point to him and say how he seems so clearly and clinically fine… his breath, his numbers, all of it… so perfect, and yet the very fact that he was not able to be roused indicates that he also wasn’t fine.

Their faces look increasingly worried. I am too. It’s been too long. The heart in me is crying out now but I don’t want to be hasty. Maybe he will wake on his own. I hate this conundrum moment. 

I remember saying that I didn’t know what call to make and hearing someone else say that they didn’t like it. And in that moment, I knew… better to call for nothing than wish I’d called earlier. 

“Make the call”, I think I said. The school resource officer stood next to me, her hand on my arm. Chase and I tease about the resource officer. I say that she is my friend and likes me better. He says that he is her favorite. It’s one of the things I tease him about to get him to smile on the rough days before he walks into the building. Right now, she’s my favorite as she quietly speaks into her radio and directs the flow of all that is unfolding. 

I stand over Chase’s body on the bed. The call went out and someone said the ambulance is en route. My throat was dry and I grabbed mints from my bag and put on some chapstick… like I was getting ready. I return to Chase’s side and stroked his head, my hand feeling shaky, my breath catching. 

An arm was around me then and the voice of a school administrator was praying for me quietly, for Chase, for all that was to come, for peace. 

The moments waiting for an ambulance are always some of the longest in life, aren’t they? It can’t have been more than a very few minutes on the clock, but in the back room of the health office, it felt like an age. I looked around. Do I have everything I need? Where is his backpack? I don’t want to take that to the hospital.

Dark blue shirts start to file in, monitors and first responder equipment in hand, the boosted red of the Stryker bed barely fitting into the narrow halls of the space. They’re here now.

I recognize a face in the first responders, and I call to him, relieved to see him. We work with him through a foundation and in the community. He will know this isn’t right. He knows what Chase looks like, sounds like… he knows this isn’t okay. I grab his arm and tell him I’m so glad he’s there. I think I gesture to Chase and say “You know… this isn’t him, right?” He tells me it will be okay. 

I hear myself saying things about his health history to another first responder. Her hair is so pretty and red and it’s weird what the brain takes in at any given moment. I say random words about dysautonomia and I answer questions. Yes, he took his medicine this morning, but only the mediation he was supposed to take… no extras, no errors. Yes I give him the medicine. Yes he ate breakfast. 

I think I lose track of the moments again. I hear the pin prick as they check his sugar. 

I can’t see the bed anymore as they rightly crowd around and I start to say something about his heart. I always have to remember to tell people he’s not in treatment. A body in active chemo is a whole different response. 

I look past the cluster around Chase’s prone body to see through the doorway that the outer room is crowded with first responders, but also with faces of our high school family… deans and teachers and people that I know watch out for Chase every day and a part of my brain registers that we are surrounded. 

Chase finally wakes. 

He knows who he is and where he is. After a moment, they transfer him to the Stryker and ask my permission to take him to the hospital. I saw yes even as I silently wonder if people ever say no.

I see Chase clock my face over the hands working on him and I make my eyes big and silly. “Do you recognize me?” If I’m teasing and calm, then maybe he won’t worry. One of the first responders reiterates my question: “Do you know who that is, Chase?” 

“My mom,” he whispers, but does not smile. 

A moment later, one of the nurses makes a joke about her favorite NFL team and again, Chase doesn’t respond. She and I share a look as we know that normal Chase would be laughing and joking with her about this – that he always teases her about this. 

On the Stryker, Chase whispers that he doesn’t feel well. 

Secured to the bed, we move out in a long line. I hand his backpack and school things to the dean who knows Darcy. I have a text that Darcy is waiting at the front of the school, knowing that things are unfolding, waiting to help. 

The principal walks next to me down the hallway as we follow the cadre surrounding Chase. Students stop in the halls and make space, their faces curious and respectful. I’m thankful it’s during the period and we’re in one of the back hallways. “What do you need?” The principal asks.
How can we help you?” I’m so thankful for this school. I can’t think of the needs over than that I need to stay close to Chase. I think I tell him that I’ll think about it all later…that we’re fine for now. 

I wonder if someone has texted Aidan yet? He’s in one of the back hallways in his French class, far from all of this, but he should know. I don’t want anyone else to tell him before we do.

At the cross in the hallways before the door to the outside, I see Bob. He is here and they let him in. A part my heart and head relaxes as it always does when I see him. I want to hug him, want to feel his arms around me, but I keep moving. I need to stay close to Chase too. Then, we are outside in the fresh air and they load Chase into the back of the ambulance, Bob standing near the bay doors, talking to Chase – a moment we would discover later that Chase has no memory of.  

I stand and watch Chase get secured. I don’t want to leave his field of vision for as long as possible. Bob tells me that Darcy is moving the car and will bring things to the ER if I need them. I ask him to remember to pick Karsten up from school. It’s so weird how the normal and the dramatic mix with each breath. 

I climb into the cab of the ambulance. I’m comfortable here. It’s not the first time. In the back, I can hear Chase’s voice as they make small talk with him while trying to start an IV. He’s talking about Darcy and how she will get his phone for him. He’s worried about that. I tell him it’s all taken care of and I’m just happy to hear his voice. They check on me and give me the plan and I take a deep breath.

I can hear the sirens as we go, see the lights flashing off of road signs as we pass. I ask the driver how often people try to outrun him instead of moving over to the side and he laughs a dry, sad sound. 

In the hospital ambulance bay, I watch them remove Chase from the back of the rig. It’s quiet in here. He has oxygen on his nose and he wants to take it off because he’s dizzy. And as the bed wheels up the hallway and towards the emergency department, I hear him fussing that Lurie doesn’t have long and confusing hallways like these. I laugh because they absolutely do, but he’s used to those hallways. 

At least he’s talking, I think to myself. At least he’s making sense. 

I should text someone and ask them to bring me a snack and my water bottle, I think. I should have been better prepared. 

And then we are in the hospital and the process of examination and answers truly begins.

Later, I would find out that the tech doing Chase’s nearly two hour MRI was himself the sibling of a boy with a brain tumor. He knew exactly what it looks like to be medically burned out like Chase and he knew just how to treat him and help him feel safe. And rather than a quiet and scared Chase, I heard his tiny voice in the machine talking about taking an art class at school. He would tell me later how the tech pretended to throw things just to make him laugh. And I sort of wanted to hug the man because he was a sibling who survived. People don’t always think about that… how hard the cancer is for the siblings. 

I text Chase’s siblings. I’m here. He’s okay. Are you okay? I love you. 

Later, I would find out that a woman on her hospital lunch break would hear over the scanner that a call was coming in for the high school… a sixteen year old male…a cancer survivor… and she would know in her heart that it was Chase and start praying. She heard the voice tell dispatch that mom was on scene and she knew to start praying for me too.

Later I would think through the things I was going to do on Thursday. The things that suddenly got moved to Wednesday, randomly and unexpectedly clearing my Thursday morning… a morning…a whole day I was not to have. 

The ER nurse came in and introduced herself, saying she remembered Chase from the last time he was there. Chase said he didn’t remember her, but thought that maybe she’d been thinner the last time he saw her. At which point, I buried my face in my hands to the sound of her laughter. 

Later, I would think through how wonderful it was that even in this local hospital Chase rarely frequents, he is known. 

And later, I would hear how the ER doctor spent long minutes on the phone with Lurie talking about Chase’s history and next steps. 

At just about eight hours from the time I got the call that Chase was sleeping and couldn’t be wakened up, we were finally cleared to go home and sleep in our own beds. 

Last time this happened, over two years ago, we checked his heart. This time, they did the MRI right away and there was an area that lit up when the contrast dye hit it, and while I don’t think anybody is certain beyond all doubt at this time, it’s more than likely that one of the benign growths in Chase’s brain (cavernous malformations, or cavernomas) experienced a micro-hemorrhage of some sort. And his brain checked him out while it happened, explaining the unresponsive “sleep”. 

Over the next several days, we have been and will continue to talk to his doctors to discuss test results and next steps. And I think the biggest question in our minds is how to protect Chase. This is still very much unfolding…

So, why write down all the details? Why ask you to hop on the ambulance with me, as it were?

Because, dear ones. I want to offer you pieces of the inside of this day so that when I say “God is good”, you can know that it isn’t what I think I should say. These words are not my attempt to put a positive spin on an utter dumpster fire. To me, these words are deep and abiding truth lived out and witnessed, because – even in the midst of a stressful and overwhelming situation – there were so many precious moments…grace moments: a breath for prayer. The comfort of the school family around us. The first responder who already knew Chase. The nurses and doctors who had Chase’s history ready to go… Do you see it? Even with tears and fears and wishing none of this were happening, we were surrounded by pieces of goodness and grace. 

The circumstances were awful, but there was so much grace in the…

…moment by moment. 

“But this I call to mind, and therefore I have hope: The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness.”

Lamentations 3:21-23

A Better Story: Of Surrender Without Defeat

LATE FALL

The phone call came late in the night.

On one end of the line, our anniversary trip (not far, but far enough) and on the other end, the oldest sister holding down the house and the boys and all the pieces. It was just for the night.

But what a night…

“Mom, he’s having chest pain. What do I do?”

Instant guilt. We never should have left. I take a deep breath and recall the words of the emergency room doctors and start to slowly explain what they told me about reproducible chest pain.

“If it hurts when you push on him, it’s more likely to be his bones and muscles, not the actual heart…”

We talk about the color of his skin, his lips, his toes. Over the phone, I teach her how to check.

There is so much we aren’t saying too.

“It will be okay,” I tell her. “Sleep now.”

“But Mom,” there is a moment of silence. “What if it gets worse and we sleep through it and don’t know…?”

I take another deep breath. There are so many unspoken fears in the question and it mirrors every fear I’ve ever felt since his diagnosis day. Because there are some things that time just doesn’t seem to dim.

What if it’s all beyond our control? What if he’s not okay and we just don’t know? What if I can’t stop something from happening?

I want to weep because I know the questions she might not even realize she’s asking.

What if this is the end of the story? What if we do it wrong?

It was a long night and Chase was stable in the morning. But the late night questions in the voice of the older sister still sit with me even now. “What if…?”

Walking with my children through suffering brings home time and again how very little we’re in control. How, particularly as they age in a house with unique special needs, there’s so very little we can do to protect them from the brokenness, and that, at the end of the day and the end of our rope, there is nothing left but to surrender.

How do we as parents teach a good surrender?

Not a surrender of hopeless defeat.

Never that.

But what if, like hundreds of souls throughout the Word and the world, it’s a surrender of hope-filled grace? What if there’s a way to show iron clad strength wrapped in the opening of tightly fisted hands?

It starts with acknowledging the Author, dear ones…

“Let it be with me just as you say.” [Luke 1]

“I believe… help me with my doubts!” [Mark 9]

The words of a pregnant teen, a father at his wit’s end for his son… the displaced, the weak, the broken… these are the voices of a good surrender. And why? Because there is a better story than the one we see in the moment and they knew it.

It takes strength to be open in the brokenness. And oh, we are broken, are we not? But we are also free and they saw it.

“If [Jesus] sets you free, you are free indeed.” [John 9]

9:30AM

WINTER

This story of Chase’s chest pain was not a one time piece. Darcy would (it’s always our precious girl, bless her tender heart) find him on the floor a few weeks later, clutching his chest.

He fights frequent dizzy spells and has now spent over a month in an event monitor – a monitor he was free of for exactly six hours before putting a holter back on [pictures]. There are clinical words like “orthostatic” and “bradycardia” and machines showing a number in the 40s next to the “BPM”.

There will be more tests, and he will almost assuredly be going back to cardiac rehab … and it’s time to talk to a rheumatology team too.

3:30PM

All the “what if” moments remain. And sometimes it’s really overwhelming to admit that we can’t protect Chase or his siblings the way our hearts cry out to protect them. And yet, I take their hands, and together, we surrender… not because this is good and not because we are defeated and done (though, wow, do we feel it some days) But because there’s a better story than the one we can see…and we know it.

And all of us? Well, we will just be quiet in the unfolding…

Moment by moment.

Of Heart Monitors and Reminders

It’s been 34 days since I wrote these next words, and as I tape a new heart monitor to Chase’s chest, I find that I very much need the reminder. Do you?

“There are ever so many life things that don’t and won’t leave us completely until we see God’s face. It isn’t abandonment. It isn’t carelessness or forgetfulness or because he doesn’t love us. It’s because he’s doing something in our pain that we can’t see yet. I believe this with my whole heart. And real talk… it still hurts, doesn’t it? But in compassion, he sits with us in our pain. The antidote isn’t erasure of the pain (though with my whole heart and soul, I wish it was)… it is presence. God with us.”

Moment by moment.

[Chase has continued to lose weight and weaken over the holiday season – he is very much where he was at this same point last year before he started cardiac rehab. Those who know autonomic disregulation of the body can confirm that this is more or less “par for the course” and there’s very little that can be done. But in classic Chase fashion, he’s gone off on his own little medical side quest with ongoing rounds of chest pain, thereby scoring himself a fancy heart monitor for 30 days – and adding more tests and appointments to the cold, wintery days. Even in the worst of it though, there are still and always good moments and for those, we are extra thankful right now.]