Category: Cancer

Light And Momentary

He stood in front of me, a grin splitting his face – an aging face covered by too white skin – the kind of skin that only comes from long days of chemotherapy. And then, even before I said my name, he took my hand in his and held it to his bald, stubbled head; the forever symbol of brain tumor treatment. His grin was huge. “God is good”, he said.

The last time I saw him, I was only 12 years old and I remember him in those treatment days, too thin and chemo white, his high, clear voice calling out loud and true in a quiet church sanctuary; proclaiming life and joy in something I couldn’t at that time imagine: deadly brain cancer.

This sweet, charismatic soul stood on the cutting edge of treatments long before they were ever standardized enough for children like Chase. He faced leaving a wife with two little children. And there were days this strong man of business and numbers was so weak that he was carried into the radiation room. But against all odds, he lived. Lived over twenty years after doctors first shook their heads, marveling at a miracle of clear scans where cancer had been.

He stands close as he tells me that he does not sleep much at night, and then a shadow crosses his face as he apologetically explains that he may not remember my name after we talk. “What happened long ago is clear, but these days, not so much…” he shrugs and grins again; “You see, I have short term memory loss.” A concept he doesn’t yet know that I understand too well… I simply smile, “Please don’t even think of it. I don’t care. It’s fine.”

As he stops to catch his train of thought and I reflect on his expression of joy that he’s down to six daily medications from sixty, I have to ask… “How do you do it? I am barely breathing after four years and I can’t even fathom twenty. How…just, how?”

His hands grow steady and his clear voice is especially strong, his gaze deeply focused as he puts forth a phrase that’s clearly been tattooed faithfully in the damaged brain tissues of memory: “You have to remember…’momentary light affliction’. All of this is momentary next to what Jesus did for us.” And then his hands came up to the sides of his eyes, like blinders on a horse, “You can’t look back, you can’t look at anything else, just Jesus.” And just like Chase, he repeated a few more times “It’s all ‘momentary light affliction…” and then a small laugh accompanies the most genuine of smiles; “Can you even imagine?”

I can’t. He breathes twenty years into hell and hardship and counts it nothing because Jesus is enough.

Can I? Will I? I believe…help my unbelief.

And then something flickers in his eyes. “Do you like coffee?” When I respond in the affirmative, he reaches into his pocket and pulls out a Starbuck’s gift card. “Here,” says the man whose damaged memory ensures he can’t work anymore. “Take this. It was a five-dollar bonus on my Chase card this month. I don’t need it. It’s yours.”

I have short term memory loss… Deeply damaged, yet joyful.

I don’t need it. It’s yours… Empty, yet giving.

It’s all momentary light affliction… Broken, yet pressing on.

And me? I don’t think I’ll ever be able to hold this green and white bit of plastic in my hand without remembering the guileless smile proclaiming that cancer is nothing compared to the cross.

Moment by moment.

“For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” 2 Corinthians 4:17-18

 

Fighting For Love

Yeah, there’s coffee, and laughter in abundance, but there’s something else too. Something that only comes forged in pain. I don’t have a word for it, but it’s there to be cherished – oddly like a terrible battle wound. See this? We went to war and we survived. Isn’t it strange that the hard things often knit us as close (if not closer) than the happy moments? They say that “love changes everything“, but sometimes I think everything changes love: kids, illness, job changes…and often just the weight of years and the passing of time. Love is not a static, stoic concept, but it is deep, and it’s meant to be unshakeable as it mirrors Jesus love for us and in us.

So what happens when things like cancer come at a marriage? In the video below, we take a few minutes to share a little of what we’ve learned and are still learning today.

Because life is messy, love is going to be messy too – that’s the primary reason we sat in front of an iPhone on a Saturday morning with no make-up, no good angles, or fanciness of any kind.

This is us.

We are real.

We fail more times than either of us would like to admit to each other or you, but we will fight for our marriage. We must fight for our marriage.

And please don’t kid yourselves…this isn’t always self-generated or motivated by flowery love, but rather, determined commitment. We had people during Chase’s treatment actually holding us accountable to talking with each other, spending time with each other, even being intimate with each other…because honestly, truly, and messily…if we hadn’t had someone calling us out and reminding us of our marriage, we would have ignored it and ignored us. This is the nature of stress and real life.

The fact that we’re still together is the grace of God, but dear ones, if there’s anything we’ve learned, it’s that you’re going to fall. It’s a foregone conclusion – this is life. But will you fall away from each other, or towards each other?

Fight for each other. Fight to fall into each other’s arms. Things like cancer will seek to take many, many pieces of us, but fight to make sure marriage is not one of those pieces.

With love, messiness, and a deep-rooted longing for Perfect Love…

Moment by moment.

[Disclaimer: After you watch this, you’ll know why I write instead of talking…or why my spiritual gift will never be filming and editing a cell phone video. Just sayin’…go with your gifts.]

Sufficient Grace

I sat on the floor, the exhaustion depressing like a physical weight on my heart and shoulders alike.

Chase curled close, sniffing and crying, “Mom, I’m ready to make it right. I’m so sorry for getting angry. I promise to never, ever do it again.”

My heart screamed but my eyes were blessedly calm despite the pressure of overwhelmed tears. “It’s okay, sweet boy. I forgave you even before you asked. Hey…look at me…look at my eyes. Do you know how much I love you?”

He nods, sniffs, and runs away, heart light once again. The anger leaves as quickly as it comes.

No matter what happens, he needs to understand grace at my hands. If I fail all else, please God, let me be your hands to him.

But oh, my hands…how they hurt. Before the peace comes, there’s often scratching and biting. For, in this outside-the-box life, this is emotion to Chase. And the primary thing is to keep him and everyone else in his direct vicinity safe. So sometimes that means taking one for the team; for the family…literally.

As I sat on the floor, I wanted to let loose ugly, deep tears, but there are some things that seem too heavy and weary.

“God. I’m tired of the struggle. I can’t do this. I mean, I did it, and I’ll do it again, but years and years of this? I can’t, I can’t, I. CAN’T…”

And then, in the desperate stillness, I -who rarely ever “hear”- I heard. Oh, I heard as clearly as if someone stood in the cloudy room with me:

“My grace is sufficient for you.”

That was it. No answers, no fixes, but one thing that transcends the hurt that’s been and all the hurts that are yet to come.

Even as I prayed to be grace to Chase, my Abba became the grace answer to me.

The road is not easy, but I know I will have what I need.

Moment by moment.

“…I begged the Lord to take it away. Each time he said, “My grace is all you need. My power works best in weakness.” So now I am glad to boast about my weaknesses, so that the power of Christ can work through me.” 2 Corinthians 12:8-9 (NLT)

Note: This picture story was published with Chase’s knowledge and permission and he even volunteered to take the picture. He is not proud or hurt, but understands that we share wisely to encourage others they are not alone. Please know that we do not take this particular challenge lightly, and that Chase’s case is lovingly monitored by social workers, neuro-psychologists, neurologists, neuro-oncologists, neurosurgeons, and behavior therapists. I hope this bit of raw openness on survivor challenges encourages you that you are not alone in your struggle. If you have any questions, please feel free to contact me privately at ellieewoldt@gmail.com. Blessings.

You Are Loved

“The faithful love of the Lord never ends! His mercies never cease.” Lamentations 3:22

“I can’t do this.”

His precious little mouth contorted on the one side – the way it always did when he became scared. “Mom, I’m not a first grader. I can’t do this. I need to go back to kindergarten.”

Behind his back, the window glowed with the last remnants of the sunset, signaling night…the night before school.

Chase shook his fuzzy, scarred head with each new sentence of voiced fear. After months of proudly proclaiming his being in first grade now and – including outrageous claims for privilege (“I should get to stay up late at night and watch Netflix because I’m a first-grader now, Mom.”) – the time had finally come and he felt himself unequal to the road in front of him.

His words flooded my heart as I heard echoes of my own timid voice in memory. Through his cancer, the ambulances, the hospitals, childbirth, even marriage… big things. Life things.

I can’t do this. God, I’m not ready for this.

I’m too young…

Too immature…

Too imperfect…

Too scared…

I need more time to prepare.

To get it right…

To be aware…

To make it count…

But here’s the thing with life… When I am blind-sided with my weakness and need, God is aware of the plan – my perfect life plan. And when things feel underdone and undone, out-of-nowhere, frenzied and stressed, He alone knows the ways to make them count for my good and His glory.

I knelt in front of Chase and put my hands lightly on his arms. Oh, how I wanted him to listen and connect with the words I needed to say. “Chase, you can and you will – because you are ready. It doesn’t feel like it yet, but you’re ready;” I paused, searching for the right words, “And, you are loved.”

You are loved.

In the hard moments when our brains acknowledge our good and His glory, but daily life throws gut punches that leave us lacking, gasping “I can’t do this”, it comes down to those very few words: I am loved; you are loved. These are the conduit from our head to our heart – from knowing what’s true to believing and resting in what’s good: His faithful love.

This had become a key sentence with my darling cancer survivor over the last several months. With his age and progression comes the increasing sense of “other”. He knows he looks different from those around him and often reacts differently too. He is strong, but it takes precious little for the remorse and regret to set in – and the fear too. I watch him feel unequal to the road in front of him and know beyond a shadow of a doubt that only perfect love can conquer this fear. And I know because I feel my own weakness, sadness and fear.

So, in the sunset before that August big day, as Chase lay his head down to sleep in that sixth year of a life we never thought he’d have, I grabbed the first piece of paper I could find (for it’s the words that are most important, not on what they are written) and I wrote what I believe…what I know and too often forget: You are loved. And then I tucked it, folded small into the blue top pocket of the crisp, new backpack to be found on the bus the next morning.

For truly, these words give a strength and joy like none other. And with these words, we are ready for anything life may bring – in His grace – moment by moment.

“See how very much our Father loves us, for he calls us his children, and that is what we are!” 1 John 3:1a

“Repeat them again and again to your children. Talk about them when you are at home and when you are on the road, when you are going to bed and when you are getting up. Tie them to your hands and wear them on your forehead as reminders.” Deuteronomy 6:7-8

 

Love Your Melon

In this house, in this winter, we’ve completely fallen in love with beanie hats.

Chase has favored them for a couple years as they keep his sensitive head warm and he can use them to cover his ears when he feels over-stimulated. However, this is this first year for non-hat-wearing me…and I am hooked.

My favorite “Smoke Speckled Beanie”

Because I’m hooked, I’m also trying to hook you too. Celebrate cool weather, style, and childhood cancer awareness with a Love Your Melon hat! You guys, for real, 50% of the profits are given to fund research initiatives and provide immediate support to children battling cancer!

Chase post-MRI, sleeping off the anesthesia in a “Navy Speckled Beanie”

Get one for yourself, one for a friend, or request a hat for a child or family member battling cancer today.