Needs Repair

As I opened the old cardboard box covered in Christmas stickers, the kids crowded around trying to be the first to glimpse the ornaments lovingly stored inside.  Even though decorating the tree can be stressful, and this year was proving especially interesting as I worked with Darcy, Aidan and two other children who refused to respond to names other than ‘Spider-Man’ and ‘Buzz Lightyear’; pulling out the ornaments and putting them up is one of my favorite things in the world.  We, all six of us, end up standing in this area of a few feet and looking through all that has been while thinking about what is yet to come.

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There are the Sunday school ornaments from when I was Darcy’s age and the kids laugh at the thought of me as a little girl, writing my name in glitter. There are the ‘Baby’s First Christmas’ globes with a date I won’t print on this page and someone asks if running water had been invented by the 1980s while Bob laughs. And then the kids go through their own ornaments, like rediscovered treasures. with a new one marked for each year, and they laugh at some of their earlier choices and greet others like long-lost friends.

Christmas 2013 was the year Darcy chose a Cinderella ornament and all three boys picked small green and yellow John Deere tractor ornaments.  Those were hard days to keep the tiny metal tractors on the tree and tamp down the temptation to take them off and play with them every day, but mostly they succeeded.  

However, in the course of only a few years and the packing, unpacking and rehanging, Chase’s tractor had succumbed to the wear. It was missing it’s front wheels and steering wheel and I’d totally forgotten about it until I reached into the sticker-covered cardboard box. Chase pressed close and as I pulled out the small box for the tractor, I saw the bright pink post-it with my mom’s neat handwriting from last year: “Needs repair” so I quickly tucked it back into the box. This wasn’t the moment to fix it and I knew if Chase saw it, he’d want it, so I gave him his ‘Baby’s First Christmas’ ornament instead and we hung it with care.  But as I’d moved away from my place in front of the box, Aidan took it, pulling out the damaged tractor’s box once again, holding it high over his head, and yelling “Whose is this?”

The second Chase saw it, he jumped, screaming “Mine! It’s mine! Give it to me, Aidy!” And ripping the box open, he saw the truth of the words he could not read and immediately stilled. “Oh. Mom, this is broken. We need to fix it.”

I held out my hands for the box and the broken ornament.  “I know, sweet boy, and we’ll fix it, but for now, why don’t you give it to me? This isn’t the right time. We’re decorating the tree. We’ll get it all set up and then you can hang it another time, okay?”

His head dropped low and I waited for the storm, but it never came. His voice stayed quiet. “But it’s my ornament. I remember it. Can I please hang it up even though it’s broken? I love it.”

Isn’t this the breathtaking wonder of Jesus coming to this world? The purpose in the story of this season? He came as one of us, grabbed for the broken and damaged, the things we’d rather hide away, fix before acknowledging, find another time to deal with, and He lovingly says: “I remembered you. You’re mine. I love you in your brokenness and I’m making all things new.”

Moment by moment.

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If God Is For Chase . . .

“Mom, do we still have to go to school even though it’s your birthday? Can’t we just stay home? . . . Uh, to be with you?”

I couldn’t help but smile at the logic of Aidan’s plea. The part about actually spending the day with his mother was definitely an afterthought to the part about getting a day off school.  “Get ready, buddy. The buses are coming soon.”

The birthday breakfast had been consumed, Aidan and Darcy were preparing for departure, and Bob had taken Chase to an early ophthalmologist follow up.  It was another busy day and a part of me thrived on it as I stood in the middle of the living room and took in the backdrop of holiday lights around another morning with the ones I love.

The ringing of my phone on the table by the Christmas tree cut into my thoughts. It was Bob.

“Hey, we’re done with the appointment.”

“Good! He’ll be on time to school. How did it go?”

“Not great. Chase needs surgery . . .”

How things and feelings can change in a minute.  

“What! Why?”

“The cataracts.” Bob’s voice was subdued. “They’ve grown. The doctor said his vision was about 20/40 in both eyes the last time he was in and now, he’s 20/60 in one and 20/100 in the other.  It’s time.”

“Now?”

“After the holidays . . . after the next MRI.”  There was was the subtle suggestion that if the cancer came back, failing eyesight will be the least of our worries.

And with those few words over the phone, the light and joy seemed to ebb from the room.  I didn’t feel the holidays or the birthdays or anything, really. Just the numbness that comes with sad thoughts and the quiet whisper that has occasionally plagued for three years now: We did this to him.  Oh, how I hate that whisper when it comes at me. And how I wish there were never any threat of guilt in the sadness.  

In the broad spectrum of surgery, this isn’t that big a deal.  In fact, it’s quite routine, so that isn’t the heartbreak.  The part that makes my throat grow tight is that it’s one more.  It’s one more and they’re pretty sure it came from the treatments that saved his life.  

Everything becomes so mixed up in moments like this and the brokenness screams out over the good.

That afternoon, I sat with Chase and we talked about his needing surgery to help his eyes.  As I spoke, he took my hands in his. “It’s okay, Mom, it’s okay. Hey, look at me. When was the last time you smiled? Can you smile for me? It’s going to be okay.” So I smiled through the tears because you have to smile when Chase asks. He’s an old soul, my bald boy. And one more surgery needs to be scheduled with no guarantee that it’ll be the last. And the voice of guilt is never fully squelched; rearing its’ ugly head in the moments of greatest vulnerability. But in this moment, I need to keep close to the things I do know: If God is for Chase, not even a hundred surgeries and complications can stand against him because he is fearfully and wonderfully made and despite the sadness, my soul knows this to be true. Even when I do not feel or see it, God promises that His plans for Chase are good and are lovingly orchestrated to give us hope.

These truths are the only lights that banish the sadness. 

Choosing joy in the pain . . . Moment by moment.

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Every Promise Is Enough

For three years now, we take a moment to reflect. This Wednesday in 2012, Chase was deep into radiation on top of his chemo therapy and was staying in the hospital. He was weak and his counts were very low, but he was stable and so, late in the afternoon of this Wednesday, I held his weak and white body by the window and stared out at the lake, shielding his face – eyelids covered in scabs from where daily anesthesia tape had ripped the tender skin – and prayed that they would let us go home for Thanksgiving. And then Dr. Goldman entered the room (as only he can enter a room) and told us to go. And we went. Three years later, we are thankful for so many things and our darling Chase is still with us to celebrate.
 
“My heart is filled with thankfulness
To Him who walks beside;
Who floods my weaknesses with strength
And causes fears to fly;
Whose ev’ry promise is enough
For ev’ry step I take,
Sustaining me with arms of love
And crowning me with grace.” [Getty, Townend]
 
Happy Thanksgiving to you and yours!
 
~The Ewoldt Family
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Chase’s Story [VIDEO]

Have you ever seen this video of Chase?

If not, I highly recommend it.  And even if so, feel free to watch it again…  We have been so blessed to partner with the St. Baldrick’s Foundation this year and are continually thankful for the platform they give us to share Chase’s story with so many.

-MbM-

[Our deepest gratitude to the incomparable Matthew Lackey for his mad, crazy video skills.  Also, a huge thank you to both Jane Hoppen and Kristen Thies for all they did to put together the finished product and the time spent filming it.]

The Good, The Bad, And The Same

Pre-procedure game of "Got Your Nose" was pretty epic...
Pre-procedure game of “Got Your Nose” was pretty epic…

Monday

He lay on the pre-op bed and absolutely knocked us over:

“I will do a good job and I will be fine because I’m a survivor, okay?”

The medicine kicked in and he asked me to text his home healthcare nurse and let her know he’d been brave for the needle in his arm.  And then, with a sigh, he passed into oblivion again for yet another MRI.  I wish I could tell you the number but I’ve lost track…his 30th? …40th?  Yeah, there have been a lot.

"Tell Miss Joanna I'm doing it, okay?  I give you permission to tell her." -Chase
“Tell Miss Joanna I’m doing it, okay? I give you permission to tell her.” -Chase

Tuesday

Despite a brief meeting with Chase’s neurosurgeon on Monday afternoon, the final word came, as it always does, from neuro-oncology regarding the MRI.  The cysts appear to have grown again, but Chase’s spine looks clear, his condition is beautifully stable, he isn’t having seizures, and so, we continue to wait.  If the cysts continue to grow, he may need a biopsy or some other surgical intervention, but it is not the right time for those things.  And so we wait some more…

Placing special markers on his spine
Placing special markers on his spine

This is bad because nothing should be growing.

This is good because nothing is growing fast or harmfully.

This is the same because everything is growing marginally as they has been all along and we’re pretty much exactly where we were three months ago: watching, waiting, and scheduling another MRI in a few more months.

Out of the tube and awake...barely.
Out of the tube and awake…barely.

And as I write these things and feel a little weary as we start the fourth year on this AT/RT road, I’m mentally checking myself for complaining about a living, breathing son who probably shouldn’t have survived more than six months, some three years ago.  The scan results comes down to what they always do: perspective.

Stuck in the wait a little while longer and choosing joy… moment by moment.

Hey, you've got to stay in shape if you're going to give out warm hugs all the time... ;)
Blood pressure cuff + stick arms … If anything can handle it, Dr. Ewoldt can 😉