Category: Cancer

68.  The number of days since we heard “He looks good, but…“.  68 days we’ve waited and it’s here.  Tomorrow, Tuesday, October 21st, is the MRI.

We’ve filled the days with closing on a house, starting new schools, moving, holidays, family visits, and so many other things.  And as they always have, the thoughts of Chase’s cancer have washed over us and ebbed again and again.  Some days pass with hardly a thought and others…others we cling to each other and those around us, begging prayer and help to hold us up because the weight of it seems too much.  Joy and pain constantly entwine around the reminder that we have absolutely nothing that was not graciously given to us by a loving and sovereign Father.

And you know what?  We’ve waited 68 days, but do you know what I absolutely forgot in the midst of a packed family weekend?  It’s been one year.  Thursday, October 16th marked one year since the last chemo went in and the machines went silent and we wondered if he’d ever recover and how on earth the cancer would stay away when we’d stopped fighting it.  One year.  So think about that tonight and tomorrow as we all sit under the MRI and the spinal tap and the imminent for better or worse news.  It’s been a whole year since chemo ended.  What a gift.

And you know what I wish I could share with you?  This last weekend, we took our first family vacation in over two years to attend my baby sister’s wedding in Oklahoma.  We were all together.  The whole family.  From all over the world, actually.  We were together.  And I was out on the dance floor with the kids and watched my baby sister, in her creamy lace gown, bend with the flowers in her hair – hands holding Chase.  And him in his blue gingham and khaki and they danced as he smiled up at Aunt Carrie because she was a princess.  I wish I could share that precious sight with you and that thankful rush of joy in the midst of it all.  What a gift.

So here we are.  The wait is about to be over.  68 days have passed in the 365 days that were an unexpected gift.  And we continue as we always have and always will…begging for grace and peace…

Moment by moment.

**We’d so greatly appreciate prayer for tomorrow and Wednesday.  Chase will be under general anesthesia and will go through a very detailed MRI and then be transferred to a different floor -still under anesthesia- for a spinal tap to check for the presence of cancer cells in his spinal fluid.  We will come home and rest tomorrow night and then go back to the hospital on Wednesday to meet with Chase’s teams of doctors and hear results and make decisions (if necessary).  We so appreciate each of you.  Thank you**

“You make known to me the path of life; in your presence there is fullness of joy; at your right hand are pleasures forevermore.” Psalm 16:11

“His spine looks clear and overall, his brain looks amazing, but…”

But.  How that one little word changes the tone.  Chase’s attending neuro-oncologist’s voice never wavered as he went on to tell us that for the first time since a January Thursday in 2013, Chase’s MRI is not clear.

There are several small growths in and around the original tumor site.

They were not there three months ago.  

He emphasized that the growths are small, but they’ve grown in a fairly short time span and there appears to be a cyst-like quality to them.

Chase’s initial baseball tumor had a cyst-like quality too.

We’ve been told that there is cause for concern, but not necessarily for alarm.  Something growing where nothing should grow is not a good thing, but there is a chance that these small growths may be delayed side effects from his days in the radiation center.

Early this next week, Chase’s MRI will be taken to a large gathering of all the doctors who work with brain tumors.  We are so blessed to have the collective mind of neuro-oncologists, neurosurgeons, radiation-oncologists, and many others working through the possibilities of care for our son.  After the tumor board convenes, we will conference with Chase’s doctors to determine a plan for Chase and to discuss various care options.

Our hearts are overwhelmed with this new knowledge.  In the few short hours we’ve known it, we’ve vacillated again and again between peace that passes our understanding and a deep, sad terror with the question “How can it possibly be anything but this cancer again?”.

The knowing is a heavy thing, and yet, Chase is still Chase: jumping off the scale just to make the nurses gasp…insisting that he couldn’t be in pre-op room he was given because it had a pink wall and “Pink is for girls! Ew, gross!”…

When I got off the phone last night, I pulled him aside and told him that there was something on the MRI.  I told him that there were some bumps that shouldn’t be there and that he shouldn’t be surprised if his doctors wanted to check up on him more.  He looked at me, nodded his head sagely in the way that only he can, and said: “Okay. Don’t tell me anything else. May I go outside?”.

In the few short hours of this heavy knowing, his response has become very precious to me.  He can’t completely understand the full picture of what could be ahead, but he doesn’t need to.  That’s for us as his parents to know.  He has his portion of the information and he can move on in peace for the moment because we are planning for whatever will be needed.

Just so is our necessary response to our Abba, our Father: He’s given us our portion for the day and we don’t know what will come tomorrow or next week, but we can say with certainty “Don’t tell me anything else” and move on in peace because He knows and He sees and has already planned for whatever is ahead…

…moment by moment.

“I stand upon the mount of God with sunlight in my soul; I hear the storms and vales beneath, I heat the thunders role.  But I am calm with Thee, my God, beneath these glorious skies; and to the height on which I stand, no storms, no clouds can rise.  O, this is life!  O this is joy, my God, to find Thee so: They face to see, Thy voice to hear, and all Thy love to know.” Horatius Bonar

Walking a few steps in somebody else’s shoes changes how you see their life.  It just does.  If I could have a “redo” option on anything in this life, I think one of the top things I’d want to do is go back and re-respond to everyone I’ve known who heard the words “You have cancer”.

I’ve prayed for them, sometimes helped in some small way, and when the surgery has removed tumor or the chemo has eradicated cells; I’ve praised God with them and been thankful with them and then I’ve mentally checked them off my list and moved on to the next issue.

Does that sound harsh?  It is.  I’m a selfish, fallen person who runs to where a fire needs to be quenched and is easily distracted by tragedy and shiny objects.  This is the hard in life: it’s not the sprint.  …it’s the marathon.  Not growing weary when the road is really long.

I guess I never realized that once you have had most forms of cancer, you’re marked for life.  Your risk for so many things -the primary cancer, a secondary cancer, a secondary illness of another form- are anywhere from heightened to completely assured.  And even if you bear no physical scars of your fight, and the risks remain low, there will always be another reminder: scans.  For some, it may be only once a year (or less), for others, like Chase, it’s every three months.

How long is three months?  Just long enough to forget the last anesthesia, the last image, the last consult and round of follow ups and clinic and everything that binds him so strongly to the hospital and that treatment season.  And just when we forget, we go back and do it again.

I wish I could go back to every person that I mentally, callously dismissed and say that I’m sorry.  I wish that I could call them up every few months and see how the latest scan looked and ask how they’re doing with walking back into that world and pray for them to have strength to face the monster again.  But I can’t.  All that’s left is what’s ahead and the severe mercy in the life lesson taught that we get no “redo” and must make the most of our today.

Why do I share these thoughts now?  Because Chase has another MRI tomorrow.

Two weeks ago, my heart jumped because I couldn’t believe how fast three months had gone.  One week ago, a darkness came -like the darkness of a week before three months ago- a darkness that whispers “What if?” and other terrifying uncertainties.  And now the calm; part accepting, part resigned.  It is what it is.  The only way out is through.  My Anglo roots show through in the “keep calm” and “stiff upper lip” thoughts that lull my heart into a near catatonic state.  Is this peace?  Unlikely.  I’ve accepted what can’t be changed.  There’s an MRI tomorrow.  …and in three months: another.

Where does the peace come in?

The peace comes in walking back through the door we dread.  Back in the hospital, back in the moment of anesthesia and parting from our son, back in the anxious waiting for the phone to ring with news.  I think about how God asked His people to put piles of stones and name the land again and again to remember…so that when they saw it, they’d remember that, even though life was complicated and hard, that He’d been good to them and He’d go on honoring His promises.  This is when the peace comes in.  The hospital is our pile of stones.  Some days, it hurts to look at it because it hurt to be there.  When I walk through the sliding doors, I feel the fear and the pain and the sadness in my home away from home…but I feel God too.  I remember all the times and places when we couldn’t go on and He carried us through.

Sometimes facing the hard is good because it forces you to remember the times you were carried.

Because, at the end of the day, I’m a selfish, fallen person who gets distracted by tragedy and shiny objects.  I hate the MRIs and the apprehension that comes with them, but I need to go back and stand in front of the pile of stones and remember again that He will see us through…

Moment by moment.